The Roots of Patient Partnering Are in Hospice and In Midwifery — And Where Else?

I am wondering about where the historic roots of patient partnering may lie.

I am sure that others are much more familiar than I am with its multiple roots, but surely hospice and midwifery are two of them.

Specifically, I remember when my sister, 25 years old, was moved to Sobel House, the second hospice in the world, back in 1977 after a nightmare few months in the traditional health care system. What a miracle beyond words it was to enter a world in which everything was driven by what she wanted.  “What would you like now?  Are you comfortable?  Is the pain coming back?  Do you want to talk?”  Finally we were in a world in which the Palestinian aide was her best friend, and was given the time to be that.

For obvious reasons I have no memory of my direct experience of midwifery, but “Call the Midwife” always echoes for me with its constant; “We are going to do this tougher,” ” We are in this together,” “I will be with you.”

Those movements are both so much about patient partnering.  Its not just about the patient’s needs, although it is, its also about the patient as an actor and informant and partner in the process.

I love to hear about other roots, or abut how those traditions made their way into patient-centeredness and patient-partnering.

(Note: My parents’ book about my sister’s hospice experience is here.)