On Identifying Side Effects for Patients with Co-Morbidities

As a patient with lots going wrong, I have found that when I try to answer a question about side effects from a new drug, I often get confused.  I think the reason is I already have so many of the side effects that appear on every drug list, that is it hard to calibrate an increase in side effects.

I suspect that treatment decisions have therefore been made for me based on what are really guesses on my part.  Its good to have my self-reporting taken seriously, but maybe I need some training on listening to my body better.

Remember that most providers are healthy, so that are not used to getting the constant alert messages that us perpetual patients are.  They have not developed the suppression and filtering tools that we have.

So, the question is what can we do?

Maybe patients should be trained in mindfulness on this.

Maybe we should test whether patients under hypnosis report more accurately on side effects.

Maybe providers should talk about this, and develop training protocols.

Maybe our research protocols should be improved to be sensitive to these issues.

Obviously, the last think I want is for providers to ignore patients, but true partnering requires careful listening.  Thanks to all those who listen to me with care and respect.

 

Advertisements

Make a comment for publication

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s