The new Hopkins video on the expectations of patients will be a powerful tool. As the link says:
Patients and families from our six Family Advisory Councils were asked a basic question: What is important to you during your health care experience? What do you wish the health care team knew? Each council created a wish list, all with many of the same common themes. Respect, communication, and partnership. These wishes embody the building blocks of patient and family centered care and they serve as a daily reminder to ask ourselves as providers, are we meeting these simple needs to show we care?
As an Oncology Council member who was somewhat involved in the drafting of the list, it really struck me how simple, but massive, the patient “asks” are. Respect, communication, and partnership. Of course, the process of gathering these ideas was itself an important clarifying project.
It is my understanding that the video had been primarily conceptualized as a tool to educate doctors and staff. I would add that, perhaps with some additional framing, it could have great use as a patient-education tool, with the goal of raising expectations among patients. Such framing might start and end with the hospital making commitments to, and and asking for help from patients to achieve, those commitments, including of course, being explicit when the goals are not met.
We certainly spend time in waiting rooms, when we might be watching videos such as this. Moreover, as more of the appointment notification and reminder system moves online, why not include links to video like this — ideally with mention of specific steps that patients with improvement ideas might take.